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February 6, 2008
| Last Week's Question | Do you have a Health Resolution for 2008?
Yes: 84% No: 16%
Top 5 Resolutions:
· Exercise/Movement
· Eat Better
· Weight Loss Diet
· Meditation
· Take Supplements
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 | | | FOUNDER'S CORNER | February 6, 2008 | | | |
 Name Change Website Launched
We Need Your Help!
As some of you may know I have been working on a special project which is very important to me and hundreds of thousands of patients throughout the United States, called the Campaign for a Fair Name. This campaign is a grassroots patient and physician effort to replace use of the name 'chronic fatigue syndrome' with the acronym ME/CFS. And whether you're an ME/CFS patient or a supporter, your help right now is crucial to make this demeaning name and what it implies disappear forever. It's simple: - Visit the Campaign website afairname.org to read the history and the rationale for using ME/CFS to replace the name 'chronic fatigue
syndrome ' - as so eloquently expressed by leaders of the patient and medical community (our advocates). - Sign the petition indicating your support of the resolution to change the name 'chronic fatigue syndrome' to the acronym ME/CFS. We need your support to make this happen - please forward the petition to friends and family members.
- Begin using the acronym ME/CFS - or simply ME, if you prefer,
as I do - everywhere. - Spread the word about the May patient vote to ratify the name ME/CFS.
- Vote - If you are a patient please vote in May. You can even sign up for a reminder email that will be sent to you just prior to the vote.
Only your support and participation can make this name change a reality.
So please help.
Sincerely,
Rich Carson
Patient Advocate
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| | | |
Q&A with Dr. Nancy Klimas, MD (held January 11)
Are ME/CFS and Fibromyalgia one & the same? What are the most promising new studies, treatments, genetic findings, antiviral therapies, tests, drugs for sleep and fatigue, diagnostic keys? Chat participants asked - and Dr. Klimas answered.
New Educational DVD on Fibromyalgia - Watch it Free Online
This video features well-known FM researchers and patient advocates explaining Fibromyalgia's impact and the latest science. View it online now, find the TV airing times in your area, or purchase copies.
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| | | | Comments & Suggestions
· Lyrica making difference
· Thanks for surgeon advice
· FM & ME/CFS not same
· FM education for MDs
· Inherited vs. genetic
| Q&A Session
· Treating multiple conditions?
· FM or psoriatic arthropy?
· Gout or FM?
· Info about FibroSleep?
· Dopamine depletion & FM?
| Questions? Comments? Please share your thoughts with us! Send us a letter  | |
| WEEKLY INSPIRATION | | |
 I claim there ain't
Another Saint
As great as Valentine.
- Ogden Nash
Opportunities: Everywhere
Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around. - Leo Buscaglia
From Beyond Casseroles - 505 Ways to Encourage a Chronically Ill Friend, a little book support groups love, by Lisa J. Copen
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These statements have not been evaluated by the Food and Drug Administration. These products are not intended to diagnose, treat, cure, or prevent any disease.
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Chocolate's Potential Health Benefits – and its Effect on Chronic Fatigue Syndrome Patients [more]
USDA Food Guide Pyramid [more]
Herbal Solutions for Digestive Wellness [more]
Vitamin D and mood disorders among women: An integrative review - Source: Journal of Midwifery and W... [more]
Flu Shot Pros & Cons [more]
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Subjects ranged from CBT to drug therapies, IV treatments, office visit guidelines for doctors, antivirals, and vitamins D and B12. There were so many questions, Dr. Lapp proposed a return engagement to cover more. 
