Fibromyalgia Resource

The key to success in changing government policies and funding is through grassroots advocacy. Grassroots advocacy involves individuals committed to influencing positive changes in their lives, their communities and in their elected governments by making their personal stories and opinions known. Getting involved means calling, writing a letter, sending an email, or even visiting your elected representatives who serve you in Washington, DC, and in your state. You CAN make changes happen.

Chronic Fatigue Syndrome/CFIDS Advocacy

To learn more about what you can do to become a CFS advocate and how to do it in an effective and professional manner, visit the website of The CFIDS Association of America (www.cfids.org). They will provide you with guidelines for becoming an advocate along with numerous names and addresses to send your correspondence to, other websites you can visit for more information and important contacts, and they also provide excellent sample letters that you can easily use to make your voice heard. To get started, click on the following link:
http://www.cfids.org/advocacy/cfids-activists.asp

Fibromyalgia Advocacy

To learn more about how you can become an effective advocate for fibromyalgia and make your voice heard by government officials, click on the following link to visit an excellent website that includes contact information and sample letters you can submit (scroll down the page to the section on “Becoming Politically Active”):
http://members.aol.com/fibroworld/advocacy.htm#Becoming
(Please note that the website is not frequently updated, and some of their links and information could be outdated. For example, their link to locating your representatives in Congress is broken. The correct link to find your elected officials is:
http://congress.org/stickers/?dir=congressorg&officials=officials&lvl=C.)

Remember: Every voice counts!